soul shifting.

May 14, 2017

10 things that completely shift when you find out you have a life-altering disease:

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1. the taste of food. [i really cannot figure out if this is medicine related or the mind. i prefer to think that my brain immediately realized its own mortality and decided to try anything and everything it illogically hated before – just in case. i have much more respect for my brain this way.]

2. the passage of time. [well what can i say? it is just moving differently. a little slower… a little less rushed… a bit more boring but with more flavor. i can only compare this to being under water with music and light and a mixed feeling of dread and joy. hmmm. i think #2 makes me sound slightly bonkers. oki.]

3. the difficulty of addiction. [have you ever wondered if a doctor ordered you not to do something would it be easier to quit? and then wondered if that was your addict ego just prolonging the quitting and why some people can just stop cold turkey and others get cancer and smoke until their last breath and which one am i? a doctor telling you to quit is the only way to know who you are in this scenario and it turns out…it’s pretty easy. phew.]

4. the purpose. [well shit. it’s not being green-lit to make your movies or getting that perfect job or finding that life partner that feels like coming home or meditation or nothing. turns out, it’s all of it.]

5. the priorities. [i don’t really care about you. i mean, in the bigger sense of things. turning 40 said goodbye to about ten thousand fucks, but finding out you have a degenerative disease? oh hell no. i come first and everyone who loves me is saying it’s about time anyway.]

6. the love and kindness. [i really do care about you. because like it or not, like me or not, we live in a world and a community where we are all interconnected. may sound cliche but the truth is that every piece of love we put out there is a huge something. every. tiny. piece.]

7. the days. [like i said, time already moves a bit differently. i want to wake up every morning and think, what will make me happy today and god damn do it. today i ate 3 pieces of pizza and walked for an hour blasting music. each day a thing we have at our happiness disposal.]

8. the friends. [this morning i got a text message from a girlfriend that said “just thinking of you today and how thankful i am for you! love you.” no joke, this morning. and i get these all the time because i am the luckiest fucking person in the world. everyone deserves such love.]

9. the forgiveness. [i recently had my heart broken. again. and believe me, there are days when i think wow, that is absolutely the last person i will ever get to know in an intimate way. i am done – totally done forever. but then, i think about what my life would be like if i had never met him, and what if this disease does something horrible to me really, really soon. and then i think, thank god. thank god i got that time with another human being who showed me i still have the strength to crack my heart wide open and love. even when it isn’t wanted. my beautiful heart.]

10. the gratefulness. [the taste of food, time, quitting smoking, the ever-allusive purpose of life, myself, others, every day and every friend. forgiveness. for these things i am so grateful and i always will be, as long as i am here. make that as long as humanly possible.]

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